Katies Journey
Meet Katie
Katie is 4 now!
She has been Diagnosed with Shwachman diamond syndrome, (SDS).
SDS is an extreemly rare, inherrited, bone marrow failure syndrome.
Katie had a bone marrow transplant May 25th 2004.
She is home and doing well, She now attends special needs preschool.
Katie's Wish Come True
My favorite things
Katie is doing very well.
She loves to make up songs, and dance around the house. She loves to eat spagetti-o's and chocolate pudding. She loves to ride the "kool bus" and is busy learning her ABC's and can can count to 10.
Katie loves to color pictures, and herself....
She is getting good at writing her name, and loves to listen to stories.
Click to join shwachmansyndrome
SDS affects approximately 5 out of every million live births in the U.S. each year.
Katie's story will air on Discovery Health Channel's
"Mystery Diagnosis" on Monday December 10th at 10:00pm!
Click here for more information Discovery Health.
UPDATE.... CLICK HERE TO WATCH THE SHOW NOW ON YOU TUBE!!!
Katie's Family
Katie lives with her Mom (Christina), Dad (Jason), Her Sister's, Amanda age 15, and Alayna age 9, and her brother's Jonathan age 11, and Christopher, almost 3 years old.
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