Guestbook for katiesjourney.50megs.com
Name:Adelaida Faura
Email:adelaidafaura{at}gmail.com
HomePage:http://
Where are
you from:
Puerto Rico
Comments:Hi, my son is working in an oral presentation about SDS, I found this touchy story about your mystery journey of your infant...now a child. Your family is fortunate because the Touch and the Power of God was there...and still there. Your story let us know about the syndrome and was helpful. Thanks for charing!!!
December 4, 2016 23:18:03 (GMT Time)



Name:Kara Stuart
Email:karabearsister{at}gmail.com
HomePage:
Where are
you from:
Highland Utah
Comments:I have taken an interest in the last few months of watching documentary's on different Syndrome's and while watching a documentary on SDS I found your story. In the end I thought I recognized the park that you were playing at. It would be really cool to meet you because at the age of 10 my best friend who was twelve at the time was diagnosed with XP or Xeroderma pigmentosum which is also a very rare 1:250,000 in the United States genetic syndrome. I am now 17 years old and my friend is almost 19 and her niece who is 3 and was diagnosed way earlier in her life which is good has the same genetic syndrome. Having two people in the same family that many years apart is very rare. They will both never be able to go outside in the sun without being completely covered head to toe or they get Melanoma Skin Cancer. It would be really cool to meet someone with another very rare syndrome if the park in the background is really the same park that I think it is that is.
April 17, 2014 00:56:15 (GMT Time)



Name:Kayla
Email:
HomePage:http://
Where are
you from:
GA
Comments:Hello! When I was a baby, I was also diagnosed with SDS. I'm not 22 years old and still trucking. It gives me hope to see all these babies and children having parents fighting through this illness with them like my mother and father did for me. God bless you! Kayla
October 23, 2012 21:45:13 (GMT Time)



Name:Tisuri
Email:zaz85zaz{at}mail.ru
HomePage:http://uckk.ru
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Comments:Splendid!!!!!!!!!!!!!!!!
June 7, 2012 06:44:02 (GMT Time)



Name:Mearena
Email:kontrewads{at}mail.ru
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Comments:Fascinating!
May 31, 2012 10:16:22 (GMT Time)



Name:Astosas
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Comments:Fascinating!
May 3, 2012 17:54:48 (GMT Time)



Name:Judur
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Comments:Much well!
March 18, 2012 10:45:42 (GMT Time)



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Comments:The remarkable site beside you!
March 5, 2012 12:07:10 (GMT Time)



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Comments:Much liked
February 28, 2012 17:02:15 (GMT Time)



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Comments:The Class material!
February 27, 2012 12:08:18 (GMT Time)



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Comments:OK! Super!
February 26, 2012 11:02:05 (GMT Time)



Name:Pritrula
Email:kis85kis{at}mail.ru
HomePage:http://famill.ru
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Comments:Much well!!!!!!!!!!!!
February 25, 2012 11:45:27 (GMT Time)



Name:Evol
Email:ikartes87{at}mail.ru
HomePage:http://jurcat.ru
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Comments:Much well
February 23, 2012 15:45:07 (GMT Time)



Name:Elonors
Email:tremorad{at}mail.ru
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Comments:Excellent site!
February 22, 2012 18:32:13 (GMT Time)



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Comments:Write else!
February 22, 2012 15:25:18 (GMT Time)



Name:Jutbor
Email:lontersads{at}mail.ru
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Comments:The Best project!
February 21, 2012 12:43:35 (GMT Time)



Name:Askovan
Email:justrewads{at}mail.ru
HomePage:http://sputnikkey.ru
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Comments:The useful project!
February 20, 2012 19:29:40 (GMT Time)



Name:Rutaser
Email:papaninser{at}mail.ru
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Comments:Enormous thank you! Good luck you !
February 20, 2012 17:02:17 (GMT Time)



Name:Tutomu
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Comments:Write else!!!!!!!!!!!!!!
February 19, 2012 17:37:50 (GMT Time)



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Comments:Big thank you! Good luck you !
February 19, 2012 14:14:19 (GMT Time)



Name:Estiroska
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Comments:Much interesting and cognitive!
February 19, 2012 08:48:33 (GMT Time)



Name:Peameno
Email:kontrewads{at}mail.ru
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Comments:
February 18, 2012 16:54:53 (GMT Time)



Name:Potredas
Email:selezer{at}mail.ru
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Comments:Super!!!!!!!!
February 18, 2012 12:23:54 (GMT Time)



Name:Niruju
Email:baobabuss{at}mail.ru
HomePage:http://telsput.ru
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you from:
Comments:The useful material!
February 17, 2012 16:58:06 (GMT Time)



Name:Durika
Email:turist90{at}mail.ru
HomePage:http://sportfut.ru
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Comments:Thank you! Good luck you!
February 17, 2012 13:06:11 (GMT Time)



Name:Rorero
Email:gastichfantas{at}mail.ru
HomePage:http://ligachempion.ru
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you from:
Comments:Want be changed reference
January 16, 2012 21:45:09 (GMT Time)



Name:Tridik
Email:rezogugll{at}mail.ru
HomePage:http://nowosti1.ru
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you from:
Comments:Write else!
November 22, 2011 15:46:08 (GMT Time)



Name:Jennifer Reutlinger
Email:princestygerlily{at}aol.com
HomePage:http://
Where are
you from:
Manchester, NH
Comments:im 25 yrs old now and was diagnosed with SDS when i was 2. Both of my younger sisters also have SDS. im very fond of watching Mystery Diagnosis and i went online to see if they had ever done an episode dealing with it. ive know about the SDS for many yrs now but recently over the past 5 yrs ive been dealing with many other probs that my drs cant explain, my dad always jokes about me going on Mystery Diagnosis.
August 16, 2011 06:18:13 (GMT Time)



Name:mary halupczok
Email:maryandhim{at}yahoo.com
HomePage:http://
Where are
you from:
St. Cloud mn
Comments:i hope she is feeling alot better im so sorry about that and stuff she looks like a wounderful little girl
February 1, 2011 21:08:02 (GMT Time)



Name:Breauna Overby
Email:breaunaloren{at}gmail.com
HomePage:http://
Where are
you from:
Kearney, NE / Denver, CO
Comments:Wow you guys are really strong.. Your story touched me so much, I hope all is well for Katie!
June 3, 2010 21:53:20 (GMT Time)



Name:kristen maupin
Email:kristenmaupin{at}yahoo.com
HomePage:http://
Where are
you from:
im amandas friend at school
Comments:your story about your daughter really touched me. im happy everything is well with her and you have a beautiful family.
November 19, 2009 19:22:31 (GMT Time)



Name:kirk floyd
Email:tornadokirk43{at}yahoo.com
HomePage:http://
Where are
you from:
new hampshire
Comments:i saw you guys on mystery diagnosis and i almost cried because she is a cute little girl and it is very unfortunate that she has this disease
April 27, 2009 23:28:35 (GMT Time)



Name:Janna Walters
Email:jwalters{at}cnpschools.org
HomePage:http://waltersfamily.wordpress.org
Where are
you from:
Midwest City, OK
Comments:God bless you and your family. May you live a long and healthy life.
February 15, 2009 22:18:38 (GMT Time)



Name:Allie Nobel
Email:cookie_monster24{at}comcast.net
HomePage:http://
Where are
you from:
colorado
Comments:I had to do a research project on SDS for biology and i stumbled upon this story. It is so sad, but it's such an incredible miracle, I'm so happy for you guys! God has truly blessed you, and I will continue to pray for Katie!
January 25, 2009 22:58:31 (GMT Time)



Name:tina sobotta
Email:tvts55{at}hotmail.com
HomePage:http://
Where are
you from:
ottawa illinois
Comments:Saw The Purple Puzzle and made me think about my niece who died eight years ago. She was five months old and died in the baby swing at the babysitters. It was supposedly ruled SIDS but she was a fussy baby who cried a lot and underweight. The poor thing would just scream and not being around her a whole lot not sure what her diaper changes were like. She was taken to the doctor several times and always just said she was just a fussy baby...Not!...It still haunts me to this day that nothing was done for the poor little helpless girl. No testing, nothing.....It's sad to say but doctors don't know everything and sometimes don't know enough to do further checking on a "Fussy Baby".....thanks for listening and I'm so happy you had a good outcome!!!
January 18, 2009 15:00:42 (GMT Time)



Name:ken eady
Email:kenco77{at}bellsouth.net
HomePage:http://momentintime.instaproofs.com
Where are
you from:
birmingham alabama
Comments:Hi, I found your site looking for eater portraits. My prayers are with Katie and your family.
January 7, 2009 03:06:58 (GMT Time)



Name:Angela
Email:heavenlydreamers{at}gmail.com
HomePage:http://
Where are
you from:
Atlanta, GA
Comments:Hey, I was researching SDS and your journal came up. My 8month old, failure to thrive daughter is going through testings for this. I am nervous...He older brother also has 'mystery' issues that we have been trying to solve. I pray that this isn't what it is, but if it is. I wanted to talk to you to see how your baby girl is doing now? My Zoey was born 4-1-08 at 8.4lbs and is not 12lbs and holding, and short, has respiratory issues that are unsolved and came back neg. on a sweat CF test. Blessings to you for posting your story. It has given me something personal to read as opposed to text book. Blessings. Angela
December 3, 2008 21:50:22 (GMT Time)



Name:Kira Valentine
Email:kvalentine82{at}gmail.com
HomePage:http://
Where are
you from:
Denver, CO
Comments:Hi there - I am so glad that while it was a struggle everything is working out and your little angel is well. I wanted to let you know that I saw Katie's story on Mystery Diagnosis - and I have finally found something that describes her symptoms to a T. I hope and pray that this is not it - but at the same time I just hope and pray for a diagnosis to this "issue" that has dictated the first two years of her life. Thank you for doing the show b/c you showed courage and you never gave up even when they didn't believe anything was wrong! I have been searching for so long that it gave me the kick in the butt that I needed to continue my search. Like you - I KNOW something is not right! Again - I am so glad Katie is growing and she seems like a happy little girl!
October 29, 2008 15:07:17 (GMT Time)



Name:Joanne Thibault
Email:joanneemilie{at}gmail.com
HomePage:www.caringbridge.org/visit/princessemilie
Where are
you from:
Chelmsford Ontario Canada
Comments:Hello Katie, You are a very beautiful and brave little girl!! My daughter Emilie has SDS to. She is gonna be 4yrs in November. Maybe one day you and Emilie will be able to get to know each other. Take very good care of yourself Joanne
September 27, 2008 23:44:03 (GMT Time)



Name:Kara
Email:pugsandchickens{at}aol.com
HomePage:http://sites.bundleofjoys.com/cally/
Where are
you from:
NJ
Comments:I saw Katie's touching story on Mystery Diagnosis. What a journey you have all gone through. I like to go online and research all the diseases on the show and I came across the website, glad to have done so. I hope Katie is doing well. I will periodically check for updates.
September 13, 2008 02:38:35 (GMT Time)



Name:Janel
Email:ajberchielli{at}yahoo.com
HomePage:http://myspecialone.blogspot.com
Where are
you from:
CA
Comments:Just wanted to say hi. Her story was very helpful. This past year my son was fianlly dx (with a different condition) and we too shared it with Mystery Dx show as well. Our episode will air this fall in Nov I think. Hope all is well with your family.
September 9, 2008 01:21:25 (GMT Time)



Name:Cyndi Smith
Email:chs5099{at}aol.com
HomePage:http://
Where are
you from:
SDSF; Irmo, SC
Comments:My 28 y/o son also has SDS; we were told he'd only be about 5'3" as an adult-- he's 5'7" and doing great. I wish the same for Katie; she is so very precious. Best wishes.
June 27, 2008 22:20:13 (GMT Time)



Name:James Dean Knudson
Email:sumpatjd{at}comcast.net
HomePage:http://
Where are
you from:
Castle Rock, Colorado
Comments:Katie is so cute
June 11, 2008 02:42:04 (GMT Time)



Name:Kayla Miles
Email:boo_boo_x3{at}yahoo.com
HomePage:http://
Where are
you from:
Hagerstown Maryland
Comments:I'm doing a research paper about your daughters disease...And i came acrossed her picture and though she was soo cute =)
May 29, 2008 14:45:40 (GMT Time)



Name:Heather Russell
Email:mui.tracker{at}fcbmrdd.org
HomePage:http://
Where are
you from:
Columbus
Comments:Love the web page, My son was in katies afternoon class last year he is still in the afternoon class.
December 12, 2007 18:01:02 (GMT Time)



Name:Deana Valiante
Email:gardenworks30{at}optonline.net
HomePage:http://
Where are
you from:
SDS group
Comments:New site looks great!
December 3, 2007 18:07:01 (GMT Time)



Name:Pattie
Email:catholicmomof3{at}gmail.com
HomePage:http://www.shwachman.50megs.com
Where are
you from:
NC
Comments:GREAT Website!!
December 1, 2007 20:13:47 (GMT Time)



Name:Christina
Email:Lifesliladvntrs{at}columbus.rr.com
HomePage:http://www.katiesjourney.50megs.com
Where are
you from:
Columbus Ohio
Comments:Guestbook test
December 1, 2007 16:05:14 (GMT Time)